Many children with disabilities rely on critical health care services delivered in their home. Oftentimes these health care services are the only factor preventing them from having to live in an institution, away from their family. Tragically, many families struggle to obtain these life-sustaining services for their children. HLA represents numerous families with children with significant disabilities who’ve been denied access to in-home health services that enable their disabled child to live at home.

Some types of needed in-home health services are provided to children with disabilities by nurses, home health aides or personal care attendants. HLA’s Protecting the Health of Children with Disabilities project fights back against the obstacles that prevent children from receiving these health services. We are particularly interested in making sure that children enrolled in our state’s Medicaid program, MassHealth, have insurance coverage and access to in-home health care providers. In addition to providing legal representation to children unable to access in-home health services, HLA aggressively advocates for policies that will make these services easier to access.

HLA’s Protecting the Health Children with Disabilities project is generously supported by grants from the Boston Foundation, the Blue Cross Blue Shield of Massachusetts Foundation and the Nord Family Foundation.